影响脑瘫儿童延续家庭康复依从性的因素分析

Factors Affecting the Rehabilitation of Children with Cerebral Palsy Continue Families Compliance Analysis

目的:调查对脑瘫(Cerebral palsy,CP)儿童延续家庭康复依从性的影响因素,为CP儿童有效的康复提供科学依据。方法:选择2012年1月—2014年1月在门诊儿童康复科诊断为脑瘫的儿童120例,全部病例均给予门诊综合康复治疗结合家庭康复训练,6个月后参照GMFM 88项粗大运动功能评定表陆续对患儿进行评估及对家长进行问卷调查,了解CP儿童康复效果及延续家庭康复依从性的影响因素。结果:120例CP儿童中,有42例患儿家长坚持家庭康复训练,依从率为35%。康复效果中显效20例,有效90例,无效10例,总有效率为92%(显效率占17%)。而家长对CP知识的认知程度、质疑家庭康复训练效果、家庭不良心理健康、对长期训练缺乏信心耐心、完全依赖医生在医院的康复治疗等因素直接影响延续家庭康复依从性。结论:加强对家长教育指导CP康复知识和早期干预,可提高对CP的认知水平及延续家庭康复训练依从性,对促进患儿康复效果及改善CP儿童生存质量有重要作用。

Objective:Survey of cerebral palsy(Cerebral Palsy,CP)children continue family rehabilitation adherence factors,to provide a scientific basis for rehabilitation of children with CP and effective.Methods:Select January 2012 to January 2014 outpatient rehabilitation for children with cerebral palsy diagnosis in 120 cases of children,all patients were given comprehensive outpatient rehabilitation therapy combined with family rehabilitation training,6months after the reference GMFM 88 term gross motor function assessment table succession of children and parents to assess the questionnaire,understanding the factors influencing children’s rehabilitation and continuing CP family rehabilitation adherence.Results:120cases of children with CP,there are 42 cases of children with parents insist on family rehabilitation training,compliance rate of 35%.Rehabilitation of the 20 cases,effective 90 cases,10cases of treatment failure.The total effective rate was 92%(17% effective rate).The parents of awareness of CP knowledge,questioning family rehabilitation training,poor family mental health,lack of confidence in long-term training for patience,totally dependent on doctors in rehabilitation hospitals and other factors directly affect the continuation of the family rehabilitation compliance.Conclusion:CP guiding strengthen parent education and early intervention rehabilitation knowledge,CP can improve the level of knowledge and adherence to the continuation of the family rehabilitation training,to promote rehabilitation of children with CP and improve the quality of child survival have an important role.