摘要
This case study presents different strategies that were explored by the patient’s mother (who is a researcher in music and medicine) when her 17-year-old daughter was diagnosed with ME (Myalgic Encephalomyelitis), also known as Chronic Fatigue Syndrome (CFS). ME is not widely recognized in the Global as well as the Swedish population at large, and within healthcare, there are no standardized recommended treatments, partly due to the lack of published evidence-based studies. This case study aims to provide insights into how the Swedish healthcare system works, how different clinics and hospitals within it operate and interconnect;and how these contribute to health outcomes after 15 months of treatment.
This case study presents different strategies that were explored by the patient’s mother (who is a researcher in music and medicine) when her 17-year-old daughter was diagnosed with ME (Myalgic Encephalomyelitis), also known as Chronic Fatigue Syndrome (CFS). ME is not widely recognized in the Global as well as the Swedish population at large, and within healthcare, there are no standardized recommended treatments, partly due to the lack of published evidence-based studies. This case study aims to provide insights into how the Swedish healthcare system works, how different clinics and hospitals within it operate and interconnect;and how these contribute to health outcomes after 15 months of treatment.
作者
Eva Bojner Horwitz
Jonas Axelsson
Olli Polo
Leif Widebert
Tö
res Theorell
Anabelle Paulino
David Ullman
Jonas Bergquist
Eva Bojner Horwitz;Jonas Axelsson;Olli Polo;Leif Widebert;Töres Theorell;Anabelle Paulino;David Ullman;Jonas Bergquist(Department of Music, Pedagogy and Society, Royal College of Music, Stockholm, Sweden;Department of Clinical Neuroscience, Karolinska Institutet, Solna, Sweden;Center for Social Sustainability, CSS, Karolinska Institutet, Solna, Sweden;Amelie Clinic and Karolinska Institutet, Solna, Sweden;ME-Center, Bragée Clinics, Stockholm, Sweden;Hälsosjälen, Mölndal, Göteborg, Sweden;Stress Research Institute, Stockholm University, Stockholm, Sweden;Karolinska Institutet, Solna, Sweden;Sophiahemmet, Barnsjukhuset Martina, Sweden;Analytical Chemistry and Neurochemistry, Department of Chemistry—BMC, Uppsala University, Uppsala, Sweden;The ME/CFS Collaborative Research Centre at Uppsala University, Uppsala, Sweden)
