Psychosocial Lived Experience of Parents with Children Diagnosed with Cancer in Lubumbashi

Objective: To determine the psychosocial problems, social acceptance and the impact of the costs of parents whose child has cancer. Method: We carried out a descriptive cross-sectional study over two-year periods (from January 3, 2018 to March 31, 2020) in the pediatric oncology unit of clinics at the University of Lubumbashi, in DR Congo. Results: 129 parents of children with cancer in the pediatric oncology unit were included in our study. Most children with cancer (53%) were accompanied by their mothers who had a low level of education (53.0%). Emotional shock was the most observed reaction (68%) to the announcement of the disease (cancer). Retinoblastoma has had a significant economic impact on families without medical coverage. Only 38% received psychological support from parents. Sadness was the most common feeling (77%) of households. Support workers consider their relationship with the medical profession acceptable in 67% and difficult in 11%. The majority of parents (78%) felt that the time to provide medical care was longer than expected. Conclusion: Parents of children with cancer had different feelings and reactions. This observation may be useful for the development of a health policy, in particular that of pediatric cancer in DR Congo.