基于慢性疾病轨迹模式对胶质瘤复发患者术前真实体验的质性研究

Experiences of patients prior to operation with recurrent glioma based on the Corbin and Strauss chronic illness trajectory framework:a qualitative study

目的 以慢性疾病轨迹模式为框架,探讨胶质瘤复发患者在术前等待阶段的疾病体验.方法 用质性研究中的现象学研究法,对14例胶质瘤复发患者在术前阶段进行半结构访谈,并运用Colaizzi 7步分析法进行分析.结果 按慢性疾病轨迹模式提炼出3个层面胶质瘤复发患者术前真实体验的主题.(1)疾病相关行为方面:包括疾病症状严重和疾病知识缺乏;(2)自我概念行为方面:包括丧失自我、宿命论,寄托于宗教信仰和自我认同、创造生命价值;(3)日常生活行为方面:包括家庭角色暂缓、矛盾情绪并存和经济负担过重.结论 护理人员应重视患者的真实体验,针对患者的问题及时进行干预,以利于患者手术的顺利进行和身心康复.

Objective To understand the experiences of patients prior to operation with recurrent glioma based on the Corbin and Strauss chronic illness trajectory framework. Methods Fourteen patients participated in the semi-structure interviews.Data were analyzed with Colaizzi′s phenomenologica l procedure. Results Based on the Corbin and Strauss chronic illness trajectory framework, experiences of patients prior to operation with recurrent glioma were extracted. (1) Illness-related work including severe symptoms of illness and lack of knowledge of illness. (2) Biographical work including loss of biography and identity of self. (3) Everyday life work including change of social roles, complicated mood combined negative experience and positive experience, heavy economic burden. Conclusions Nursing staff should attach importance to experiences of patients, and provide targeted interventions for successful operations and recovery of physical and spiritual healing.