PICC 带管肿瘤患儿照顾者家庭护理体验的质性研究

The experiences of family caregivers of children with tumor of PICC- line:a qualitative research

目的：探讨 PICC 带管肿瘤患儿照顾者家庭护理的体验及感受。方法采用质性研究中的现象学研究法，对16名 PICC 带管肿瘤患儿照顾者进行半结构式访谈，用 Colaizzi 分析法进行资料分析。结果通过访谈得出5个主题：家庭护理知识和技能缺乏、心理负担重、社会支持系统薄弱、坦然接受与积极应对、护理经验的积累带来的成就感。结论了解照顾者家庭护理的体验及在实际护理过程中遇到的问题，可协助护理人员对其提供专业的家庭护理指导及心理疏导，以减轻照顾者的心理负担，满足其护理需求。

Objective To explore the experiences of family caregivers of children with tumor of PICC-line. Methods A semi- structured interview was conducted with 16 family caregivers of children with tumor of PICC- line. Data were analyzed based on Colaizzi′s phenomenological research method. Results Five themes were extracted including lack of knowledge and skills of family care, heavy psychological burden, weakness of social support system, to face calmly and respond actively, sense of achievement brought by gaining nursing experience. Conclusions Understanding the experiences and problems of family caregivers can help nurses provide professional family care education and psychological counseling to alleviate their psychological burden and satisfy their needs.