脑积水患儿母亲照护体验的质性研究

Qualitative research on experience and feelings of mothers of children with hydrocephalus

目的：深入了解脑积水患儿母亲照护期间的心理体验和需求，探索促进其身心健康的相关因素。方法采用半结构式访谈法，访谈14名脑积水患儿母亲，并用Colaizzi现象学研究法分析资料。结果通过分析、整理和提炼主题，患儿母亲的照护体验可归纳为3个主题：负性心理情感过重；压力应对困难；支持系统需求迫切。结论护理人员应深入了解其母亲的内心体验，为其提供医疗护理及情感等支持，使其适应照顾角色，提高照护能力，促进患儿及家庭健康。

Objective To describe the lived experience of mothers of children with hydrocephalus. Methods A semi-structured interview was conducted with 14 mothers of children with hydrocephalus. Data were analyzed based on Colaizzi phenomenotogical research method. Results Through the analysis, sorting and refining the theme, the mother's care experience could be divided into three themes: psychological emotional, stress response, social support requirements. Conclusions Nursing staff should have a thorough understanding of the experience to provide medical care and emotional support, improve the ability of the parents care,which could help caregiver adapt to their roles, maintain and promote the health of children patients and their families .