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Data Access, Control, and Privacy Protection in the VODAN-Africa Architecture
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作者 Putu Hadi Purnama Jati Mirjam van Reisen +4 位作者 erik flikkenschild Fransisca Oladipo Bert Meerman Ruduan Plug Sara Nodehi 《Data Intelligence》 EI 2022年第4期938-954,1037-1038,共19页
The Virus Outbreak Data Network(VODAN)-Africa aims to contribute to the publication of Findable Accessible, Interoperable, and Reusable(FAIR) health data under well-defined access conditions. The next step in the VODA... The Virus Outbreak Data Network(VODAN)-Africa aims to contribute to the publication of Findable Accessible, Interoperable, and Reusable(FAIR) health data under well-defined access conditions. The next step in the VODAN-Africa architecture is to locally deploy the Center for Expanded Data Annotation and Retrieval(CEDAR) and arrange accessibility based on the ‘data visiting’ concept. Locally curated and reposited machine-actionable data can be visited by queries or algorithms, provided that the conditions of access are met. The goal is to enable the multiple(re)use of data with secure access functionality by clinicians(patient care), an idea aligned with the FAIR-based Personal Health Train(PHT) concept. The privacy and security requirements in relation to the FAIR Data Host and the FAIRification workspace(to produce metadata) or dashboard(for the patient) must be clear to design the IT architecture. This article describes a(first) practice, a reference implementation in development, within the VODAN-Africa and Leiden University Medical Center community. 展开更多
关键词 VODAN VODAN-Africa FAIR Data and Services FAIR privacy framework FAIR certification FAIR Guidelines
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