Purpose:The level of care burden experienced by caregivers of patients with spinal cord injury and their coping style were evaluated in order to identify ways to improve their capacity to respond and reduce the care b...Purpose:The level of care burden experienced by caregivers of patients with spinal cord injury and their coping style were evaluated in order to identify ways to improve their capacity to respond and reduce the care burden.Methods:A convenience sampling method was used to select 150 spinal cord injury patients who were discharged from the Second and the Third Affiliated Hospital of Nanchang University and their primary caregivers.The Chinese version of the Zarit Caregiver Burden Interview and the Simplified Coping Style Questionnaire were distributed to assess caregiver burden and coping strategies.Results:The care burden score of the caregivers of patients with spinal cord injury was 52.9111.56 points.Eighty-eight percent of caregivers reported moderate or severe care burden levels.The largest proportion of caregivers were female spouses,who were less likely to use an active coping strategy.A negative coping strategy was more frequently used by caregivers compared to healthy adults,and was positively correlated with burden of care.In contrast,a negative correlation was found between the care burden and an active coping style.Conclusion:Primary caregivers of spinal cord injury patients report a heavy burden of care.As active coping strategies are more beneficial,medical care providers should encourage caregivers to make more use of these coping styles to promote physical and mental health for themselves,their patients and their family,as well as to improve the quality of care provided.展开更多
This study aimed to clarify the characteristics of Japanese male family caregivers in terms of their sense of care burden, their capacity to deal with stress, and their subjective sense of well-being. A survey consist...This study aimed to clarify the characteristics of Japanese male family caregivers in terms of their sense of care burden, their capacity to deal with stress, and their subjective sense of well-being. A survey consisting of questionnaires and interviews was conducted from March to May 2014 in the subjects’ homes. Subjects were 27 Japanese males (the age range: 54 - 85) who provided home care for their family member. Caregivers who were good at relieving stress or who had a subjective sense of well-being were found to have a low care burden. The types and seriousness of diseases of the care recipients were not related to the caregivers’ sense of burden, capacity to deal with stress, or subjective sense of well-being. Based on the interview results, caregivers were found to have the following characteristics: they were particular about methods of care;they learned how to provide home care by themselves;they used their social intelligence in home care;they always provided home care while keeping the future in mind;and most notably, they considered home care to be their primary occupation. On the whole, male caregivers were found to alleviate the burdens of home care by making use of the nursing-care service systems that enabled them to relieve stress and enjoy their leisure time. Caregivers considered home care to be their occupation and used their past social experiences. The workforce helped them deal with the care recipients’ health conditions or day-to-day changes so that they could overcome the care burden.展开更多
<em>Background</em>: Almost 32.5 million people are diagnosed with cancer annually. The huge number of cancer patients with deteriorating health renders a far greater number of informal caregivers bearing ...<em>Background</em>: Almost 32.5 million people are diagnosed with cancer annually. The huge number of cancer patients with deteriorating health renders a far greater number of informal caregivers bearing the burden of care in different forms and magnitude. The main purpose of the study was to explore the types of burden perceived by the informal caregivers and the factors associated with the caregiving burden. <em>Methods</em>: A quantitative descriptive cross-sectional study design was adopted to answer the research questions from April to May 2016. Around 200 informal caregivers were recruited from one of the tertiary hospitals of Karachi, Pakistan. The modified ZBIS was used to collect data which was analyzed by using Chi-square test to find the associations between the demographic characteristics of informal caregivers and the perceived burden of care. <em>Results</em>: Findings of the study identified the employment status (P ≤ 0.020) and the religion of the informal caregivers (P ≤ 0.027) as significant, demographic variables. The functional level of care receivers was also found to be significant (P ≤ 0.002). The study also recognized four forms of burdens, with significant mean values, including financial (2.85), psychological (2.50), social (2.58), and physical (2.44). Most of the participants reported experiencing a moderate magnitude of burden, ranging from 40 - 60, on the scale of 0 - 80. <em>Conclusion</em>: The study highlighted four different forms of burdens, that is, financial, psychological, social, and physical, along with their associated demographic factors. Health care agencies and public health personnel should work with informal caregivers to reduce burden of care.展开更多
This article addresses issues regarding the transmission of HIV;without the combination antiretroviral treatment (cART), HIV causes a fatal outcome of those infected in most cases. First, legal issues: For years, cont...This article addresses issues regarding the transmission of HIV;without the combination antiretroviral treatment (cART), HIV causes a fatal outcome of those infected in most cases. First, legal issues: For years, controversial discussions have dealt with the subject of the legal classification of HIV infection, such as “… criminalization of HIV exposure might limit access to and uptake of HIV prevention services…” Based on the rule of law of a constitutional state, we explain the legal principles that serve to protect the legal rights of its citizens. The state has to protect its citizens from harm by other people. The prosecution and conviction of a specific person for a proven HIV infection are legal. Therefore, general decriminalization of HIV infection would undermine the right of thereby harmed citizens to compensation. Second, HIV prevention strategies: Based on the Test and Treatment Strategy (TASP)1, controlled studies were undertaken to find out which framework conditions could improve their benefit. We outline concepts that can help to curb the still ongoing spread of HIV: By providing early HIV diagnosis and ongoing HIV care services as part of updated education and prevention campaigns. Also, concerted, comprehensive campaigns are required to demonstrate further impacts of HIV infection: Both on the quality of life of infected individuals due to the development of non-communicable diseases and the increasing burden to societies as a whole.展开更多
目的:对癌症病人的家庭照顾者照护负担相关研究进行可视化分析。方法:检索Web of Science核心合集数据库收录的癌症病人家庭照顾者的照护负担的相关文献,检索时限为建库至2023年4月30日。应用CiteSpace软件对文献中的关键词、国家、机...目的:对癌症病人的家庭照顾者照护负担相关研究进行可视化分析。方法:检索Web of Science核心合集数据库收录的癌症病人家庭照顾者的照护负担的相关文献,检索时限为建库至2023年4月30日。应用CiteSpace软件对文献中的关键词、国家、机构、共被引文献进行可视化分析。结果:共纳入文献690篇,发文量最多的国家是美国;发文量最多的机构是英国研究图书馆;研究热点为癌症病人的家庭照顾者相关照护负担、干预措施、生活质量等。结论:癌症病人的家庭照顾者照护负担发文量总体呈上升趋势,国内相较于国外仍有差距,建议国内研究者多与国际主要学者、研究机构交流,深入研究内容,结合我国国情,制订减轻照护者照护负担的方案。展开更多
基金supported by Jiangxi Province Health Department(20133061).The authors declare no conflict of interest.
文摘Purpose:The level of care burden experienced by caregivers of patients with spinal cord injury and their coping style were evaluated in order to identify ways to improve their capacity to respond and reduce the care burden.Methods:A convenience sampling method was used to select 150 spinal cord injury patients who were discharged from the Second and the Third Affiliated Hospital of Nanchang University and their primary caregivers.The Chinese version of the Zarit Caregiver Burden Interview and the Simplified Coping Style Questionnaire were distributed to assess caregiver burden and coping strategies.Results:The care burden score of the caregivers of patients with spinal cord injury was 52.9111.56 points.Eighty-eight percent of caregivers reported moderate or severe care burden levels.The largest proportion of caregivers were female spouses,who were less likely to use an active coping strategy.A negative coping strategy was more frequently used by caregivers compared to healthy adults,and was positively correlated with burden of care.In contrast,a negative correlation was found between the care burden and an active coping style.Conclusion:Primary caregivers of spinal cord injury patients report a heavy burden of care.As active coping strategies are more beneficial,medical care providers should encourage caregivers to make more use of these coping styles to promote physical and mental health for themselves,their patients and their family,as well as to improve the quality of care provided.
文摘This study aimed to clarify the characteristics of Japanese male family caregivers in terms of their sense of care burden, their capacity to deal with stress, and their subjective sense of well-being. A survey consisting of questionnaires and interviews was conducted from March to May 2014 in the subjects’ homes. Subjects were 27 Japanese males (the age range: 54 - 85) who provided home care for their family member. Caregivers who were good at relieving stress or who had a subjective sense of well-being were found to have a low care burden. The types and seriousness of diseases of the care recipients were not related to the caregivers’ sense of burden, capacity to deal with stress, or subjective sense of well-being. Based on the interview results, caregivers were found to have the following characteristics: they were particular about methods of care;they learned how to provide home care by themselves;they used their social intelligence in home care;they always provided home care while keeping the future in mind;and most notably, they considered home care to be their primary occupation. On the whole, male caregivers were found to alleviate the burdens of home care by making use of the nursing-care service systems that enabled them to relieve stress and enjoy their leisure time. Caregivers considered home care to be their occupation and used their past social experiences. The workforce helped them deal with the care recipients’ health conditions or day-to-day changes so that they could overcome the care burden.
文摘<em>Background</em>: Almost 32.5 million people are diagnosed with cancer annually. The huge number of cancer patients with deteriorating health renders a far greater number of informal caregivers bearing the burden of care in different forms and magnitude. The main purpose of the study was to explore the types of burden perceived by the informal caregivers and the factors associated with the caregiving burden. <em>Methods</em>: A quantitative descriptive cross-sectional study design was adopted to answer the research questions from April to May 2016. Around 200 informal caregivers were recruited from one of the tertiary hospitals of Karachi, Pakistan. The modified ZBIS was used to collect data which was analyzed by using Chi-square test to find the associations between the demographic characteristics of informal caregivers and the perceived burden of care. <em>Results</em>: Findings of the study identified the employment status (P ≤ 0.020) and the religion of the informal caregivers (P ≤ 0.027) as significant, demographic variables. The functional level of care receivers was also found to be significant (P ≤ 0.002). The study also recognized four forms of burdens, with significant mean values, including financial (2.85), psychological (2.50), social (2.58), and physical (2.44). Most of the participants reported experiencing a moderate magnitude of burden, ranging from 40 - 60, on the scale of 0 - 80. <em>Conclusion</em>: The study highlighted four different forms of burdens, that is, financial, psychological, social, and physical, along with their associated demographic factors. Health care agencies and public health personnel should work with informal caregivers to reduce burden of care.
文摘This article addresses issues regarding the transmission of HIV;without the combination antiretroviral treatment (cART), HIV causes a fatal outcome of those infected in most cases. First, legal issues: For years, controversial discussions have dealt with the subject of the legal classification of HIV infection, such as “… criminalization of HIV exposure might limit access to and uptake of HIV prevention services…” Based on the rule of law of a constitutional state, we explain the legal principles that serve to protect the legal rights of its citizens. The state has to protect its citizens from harm by other people. The prosecution and conviction of a specific person for a proven HIV infection are legal. Therefore, general decriminalization of HIV infection would undermine the right of thereby harmed citizens to compensation. Second, HIV prevention strategies: Based on the Test and Treatment Strategy (TASP)1, controlled studies were undertaken to find out which framework conditions could improve their benefit. We outline concepts that can help to curb the still ongoing spread of HIV: By providing early HIV diagnosis and ongoing HIV care services as part of updated education and prevention campaigns. Also, concerted, comprehensive campaigns are required to demonstrate further impacts of HIV infection: Both on the quality of life of infected individuals due to the development of non-communicable diseases and the increasing burden to societies as a whole.
文摘目的:对癌症病人的家庭照顾者照护负担相关研究进行可视化分析。方法:检索Web of Science核心合集数据库收录的癌症病人家庭照顾者的照护负担的相关文献,检索时限为建库至2023年4月30日。应用CiteSpace软件对文献中的关键词、国家、机构、共被引文献进行可视化分析。结果:共纳入文献690篇,发文量最多的国家是美国;发文量最多的机构是英国研究图书馆;研究热点为癌症病人的家庭照顾者相关照护负担、干预措施、生活质量等。结论:癌症病人的家庭照顾者照护负担发文量总体呈上升趋势,国内相较于国外仍有差距,建议国内研究者多与国际主要学者、研究机构交流,深入研究内容,结合我国国情,制订减轻照护者照护负担的方案。
