<strong>Background</strong>:<span> </span><span>Limited research concerns the study of continuity in the future of the physical and social status of elderly people with DS that is when pe...<strong>Background</strong>:<span> </span><span>Limited research concerns the study of continuity in the future of the physical and social status of elderly people with DS that is when people who take care of them will not be there anymore (“<i></i></span><i><i><span>after</span></i><span> </span><i><span>we</span></i><span> </span><i><span>have</span></i><span> </span><i><span>gone</span></i></i><span>”). </span><b><span>Objective</span></b><b><span>:</span></b><span> From a biopsychosocial perspective, to investigate the daily life of ageing people with Down Syndrome over 45 years old in order to identify the most important issues in better planning for their future. </span><b><span>Methods</span></b><b><span>:</span></b><span> A cross-sectional Italian national study was carried out. An <i></i></span><i><i><span>ad</span></i><span> </span><i><span>hoc</span></i></i><span> questionnaire was administered to formal and informal caregivers of aging people with Down Syndrome. </span><b><span>Results</span></b><b><span>:</span></b><span> 136 family members and health professionals were involved. Most of </span><span>the </span><span>people with Down Syndrome live at home, attend a daily center and do many activities. Most of them had never worked and she/he is not at all autonomous. 25% of caregivers declared that, nowadays, there is not planning for the future, and 30.9% of participants who planned their future collected information when it occurred (e.g. when the parents pass away). </span><b><span>Conclusions</span></b><b><span>:</span></b><span> </span><span>The a</span><span>ging of people with DS requires attention to the planning of their future. In order to better plan, it is necessary to avoid programming </span><span>“</span><span>in emergency</span><span>”</span><span>, but for time, keeping in mind of the activities developed by the people, their abilities and all of the elements that have allowed them to live well up to a point of their life.</span>展开更多
What will my own life be like in fifteen years?It is interesting for me to guess. Fifteen years from now, I'll live and work in Beijing. I'll be a teacher and meet a lot of in- teresting and funny children. Al...What will my own life be like in fifteen years?It is interesting for me to guess. Fifteen years from now, I'll live and work in Beijing. I'll be a teacher and meet a lot of in- teresting and funny children. Also, I'll live in展开更多
文摘<strong>Background</strong>:<span> </span><span>Limited research concerns the study of continuity in the future of the physical and social status of elderly people with DS that is when people who take care of them will not be there anymore (“<i></i></span><i><i><span>after</span></i><span> </span><i><span>we</span></i><span> </span><i><span>have</span></i><span> </span><i><span>gone</span></i></i><span>”). </span><b><span>Objective</span></b><b><span>:</span></b><span> From a biopsychosocial perspective, to investigate the daily life of ageing people with Down Syndrome over 45 years old in order to identify the most important issues in better planning for their future. </span><b><span>Methods</span></b><b><span>:</span></b><span> A cross-sectional Italian national study was carried out. An <i></i></span><i><i><span>ad</span></i><span> </span><i><span>hoc</span></i></i><span> questionnaire was administered to formal and informal caregivers of aging people with Down Syndrome. </span><b><span>Results</span></b><b><span>:</span></b><span> 136 family members and health professionals were involved. Most of </span><span>the </span><span>people with Down Syndrome live at home, attend a daily center and do many activities. Most of them had never worked and she/he is not at all autonomous. 25% of caregivers declared that, nowadays, there is not planning for the future, and 30.9% of participants who planned their future collected information when it occurred (e.g. when the parents pass away). </span><b><span>Conclusions</span></b><b><span>:</span></b><span> </span><span>The a</span><span>ging of people with DS requires attention to the planning of their future. In order to better plan, it is necessary to avoid programming </span><span>“</span><span>in emergency</span><span>”</span><span>, but for time, keeping in mind of the activities developed by the people, their abilities and all of the elements that have allowed them to live well up to a point of their life.</span>
文摘What will my own life be like in fifteen years?It is interesting for me to guess. Fifteen years from now, I'll live and work in Beijing. I'll be a teacher and meet a lot of in- teresting and funny children. Also, I'll live in
