Stages of Emotional Experience of Parents of Children with Cochlear Implantation (CI)

Rehabilitation is a set of measures aimed at compensating or fully restoring the functions of the patient impaired by the disease. In the rehabilitation of children with a cochlear implant, a comprehensive, systematic approach is essential in the work of doctors, teachers, sign language teachers, psychologists, and families. Rehabilitation and social adaptation of children with a cochlear implant depend not only on specialists but also on the ability of parents to help the child organize educational activities in an optimistic mood and the ability to provide emotional support. This means that the role of parents in the way to successful rehabilitation is high, and therefore this topic is especially relevant today. .

A comparison of the quality of life of parents of children using hearing aids and those using cochlear implants

Objective:The goal of this study was to evaluate the quality of life of parents of children who use hearing aids(HA)with those who use cochlear implants(CI)in the Indian context and document any differences found.Methods:The Kannada version of the AQoL-4D was administered in a modified fashion to 131 parents(87 HA and 44 CI).Sociodemographic details were collected for supplemental information on the intervention strategy used.Results:A total of 49 parents(29 HA and 20 CI)responded to the questionnaire sent.The mean total scores for both the groups were similar(HA group=17.9(SD=5.5),CI group=17.2(SD=3.4)),as was the score for the first subscale(HA group=8.6(SD=2.9);CI group=8.5(SD=2.6))of the AQoL-4D.No significant differences were found between the two groups on either scores[Total Score:U(N_(HA)=29,NCI=20)=280.5,z=0.194,p>0.05;Subscale 1 Score:U(N_(HA)=29,NCI=20)=281.5,z=-0.176,p>0.05].The degree of hearing loss in the hearing aid group was equivalent to that of the cochlear implant group but this did not appear to influence parental quality of life.Conclusion:Parents of children with hearing aids and cochlear implants appear to be similar on several psychosocial factors in the realms of functional,social,and psychological well-being.In terms of parental quality of life,hearing aids and cochlear implants appear to be equally effective intervention techniques.

耳蜗植入患儿家长康复期望的质性研究

目的探讨耳蜗植入患儿家长康复期望,提供支持性康复策略。方法半结构式访谈3种助听模式下的15名患儿家长,并采用Colaizzi七步分析法进行资料整理、分析。结果提炼出家长康复期望的4个主题:改善听能(察觉声音、分辨声音、辨识声音、理解听力)、发展言语发声(理解语言、扩展词汇、口语表达)、改善认知行为(减少知觉差异、提升记忆力、强化思维意识、促进个性发展)、适应社会交往(和谐人际关系、畅通沟通交流)。结论耳蜗植入儿童家长的康复期望多样化,需根据患儿个体差异,帮助家长建立合理的康复期望值,促进患儿实现全面康复。

人工耳蜗植入儿童家长亲职教育需求状况调查

目的:探讨人工耳蜗植入儿童家长亲职教育需求状况。方法:以120例人工耳蜗植入儿童家长为调查对象,通过问卷调查的形式从家长心理调适、社会资源、家长沟通与社交几方面了解家长亲职教育的需求。结果:人工耳蜗植入儿童家长在心理调适、社会资源以及家长沟通与社交几方面都需要亲职教育,而较好运用亲职教育的家长对患者术后适应过程及成长有较好的影响。结论:人工耳蜗植入儿童家庭亲职教育迫切需要提高,而在社会资源方面尤为迫切,他们希望获得与人工耳蜗植入儿童相关的政策和权益(如免费耳蜗)、语言康复等方面的知识,并由此对患儿的适应及成长产生较好的影响。

人工耳蜗植入患儿父母亲职压力与家庭坚韧性的相关性研究

目的:了解人工耳蜗植入患儿父母亲职压力以及家庭坚韧性的现状,探讨二者的相关性。方法:采用亲职压力量表简式版和家庭坚韧性量表对220名人工耳蜗植入患儿父母进行问卷调查。结果:人工耳蜗植入患儿父母亲职压力总分(104.54±14.98)分,家庭坚韧性总分(153.88±13.40)分。人工耳蜗植入患儿父母亲职压力与家庭坚韧性及其各维度呈负相关(P<0.05)。回归分析显示,家庭坚韧性是人工耳蜗植入患儿父母亲职压力的独立影响因素,可解释总变异度的20.3%。结论:人工耳蜗植入患儿父母亲职压力与其家庭坚韧性密切相关,应从家庭坚韧性的角度出发,缓解人工耳蜗植入患儿父母的亲职压力。

儿童人工耳蜗植入术后音乐能力发育研究

目的：探讨儿童人工耳蜗植入术后音乐能力的发展趋势，为人工耳蜗植入儿童音乐能力评估提供临床资料。方法：26例人工耳蜗植入儿童，手术年龄为11～68个月，平均35．6个月；以76例1～24月龄的听力正常婴幼儿作为对照组，平均月龄6．1个月。使用小龄人工耳蜗儿童音乐能力等级量表进行评估。人工耳蜗植入儿童评估分别在开机时，开机后1、3、6、9、12及24个月时进行；听力正常婴幼儿评估分别在1、3、6、9、12及24月龄时进行。结果：人工耳蜗植入儿童的音乐能力得分随人工耳蜗使用时间的延长而显著提高（P〈O．05），听力正常婴幼儿的音乐能力得分亦随年龄的增长而显著提高（P〈O．05）。经两样本比较的秩和检验，人工耳蜗植入儿童与听力正常婴幼儿在听力年龄为1、3、6、9、12个月时音乐能力得分的差异无统计学意义（P〉O．05），在听力年龄为24个月时音乐能力得分的差异有统计学意义（P〈O．05）。结论：人工耳蜗植入儿童开机后音乐能力随人工耳蜗使用时间的延长而显著提高，并在开机12个月内呈现快速增长趋势。