While children with disabilities experience exclusion and segregation in education, parents' involvement has been very limited due to the lack of parent support in China. Negative attitudes toward disability in an en...While children with disabilities experience exclusion and segregation in education, parents' involvement has been very limited due to the lack of parent support in China. Negative attitudes toward disability in an environment deeply influenced by the individual model of disability thinking makes it crucial for parents to advocate for their children's rights in inclusive education through collaborative and organized efforts. This article examines barriers obstructing disabled children's rights in pursuing inclusive education, barriers parents face to advocate for their children, and the development of parent support. The author argues that equal and inclusive education for all has a broader social impact beyond disability rights to eliminate barriers and pursue dignity for all. In doing so, the author reveals existing structural inequalities facing inclusive education, encourages the momentum for future changes, and utilizes a good example of parent advocacy for a deeper and meaningful policy advancement to overcome discrimination on the basis of disability that causes segregation and exclusion in education. Recommendations include strategies for the construction of a support network for parents to play their important roles in advancing the rights of their disabled children in inclusive education.展开更多
</span><b><span style="font-family:Verdana;">Background:</span></b><span style="font-family:Verdana;"></b></span><b> </b><span style=&...</span><b><span style="font-family:Verdana;">Background:</span></b><span style="font-family:Verdana;"></b></span><b> </b><span style="font-family:Verdana;">People-centered tuberculosis (TB) care promotes treatment adherence and outcomes. TB patients’ and families’ health education and protection of their rights are among the core components of people-centered care. We aimed to assess the level of people-centeredness of TB care as a proxy to quality in the largest inpatient unit of the National Pulmonology Center (NPC) in Armenia. <b></span><b><span style="font-family:Verdana;">Methods:</span></b><span style="font-family:Verdana;"></b></span><b> </b><span style="font-family:Verdana;">We conducted a qualitative study by interviewing clinical and administrative staff, TB patients, and family members to learn their experiences about patient and family education and rights (PFE&R) protection practices focusing on two Joint Commission International (JCI) Standards for Hospital Accreditation. Mixed</span></span></span><span style="font-family:Verdana;"><span style="font-family:Verdana;"><span style="font-family:Verdana;">-</span></span></span><span><span><span style="font-family:""><span style="font-family:Verdana;">conventional inductive and directed deductive content approach guided the analysis of data. <b></span><b><span style="font-family:Verdana;">Results:</span></b><span style="font-family:Verdana;"></b></span><b> </b><span style="font-family:Verdana;">The study revealed various gaps in the provided services. According to the TB physicians and nurses, they routinely educated patients and families and took actions to protect their rights. However, practices reported by TB providers varied across clinical departments and professionals and did not meet the recommendations of the JCI standards. The document review revealed that no written policies or procedures existed in the NPC inpatient unit to guide the implementation of PFE&R. Lastly, patients</span></span></span></span><span style="font-family:Verdana;"><span style="font-family:Verdana;"><span style="font-family:Verdana;">’</span></span></span><span><span><span style="font-family:""><span style="font-family:Verdana;"> inconsistent experiences were also indicative of the lack of standardization and issues with PFE&R implementation. <b></span><b><span style="font-family:Verdana;">Conclusion:</span></b><span style="font-family:Verdana;"></b></span><b> </b><span style="font-family:Verdana;">Bridging the gap between existing and recommended practices by establishing and enforcing new people-centered policies and procedures is a pledge for improving operations and patients’ experiences with a potential nationwide impact in Armenia.展开更多
文摘While children with disabilities experience exclusion and segregation in education, parents' involvement has been very limited due to the lack of parent support in China. Negative attitudes toward disability in an environment deeply influenced by the individual model of disability thinking makes it crucial for parents to advocate for their children's rights in inclusive education through collaborative and organized efforts. This article examines barriers obstructing disabled children's rights in pursuing inclusive education, barriers parents face to advocate for their children, and the development of parent support. The author argues that equal and inclusive education for all has a broader social impact beyond disability rights to eliminate barriers and pursue dignity for all. In doing so, the author reveals existing structural inequalities facing inclusive education, encourages the momentum for future changes, and utilizes a good example of parent advocacy for a deeper and meaningful policy advancement to overcome discrimination on the basis of disability that causes segregation and exclusion in education. Recommendations include strategies for the construction of a support network for parents to play their important roles in advancing the rights of their disabled children in inclusive education.
文摘</span><b><span style="font-family:Verdana;">Background:</span></b><span style="font-family:Verdana;"></b></span><b> </b><span style="font-family:Verdana;">People-centered tuberculosis (TB) care promotes treatment adherence and outcomes. TB patients’ and families’ health education and protection of their rights are among the core components of people-centered care. We aimed to assess the level of people-centeredness of TB care as a proxy to quality in the largest inpatient unit of the National Pulmonology Center (NPC) in Armenia. <b></span><b><span style="font-family:Verdana;">Methods:</span></b><span style="font-family:Verdana;"></b></span><b> </b><span style="font-family:Verdana;">We conducted a qualitative study by interviewing clinical and administrative staff, TB patients, and family members to learn their experiences about patient and family education and rights (PFE&R) protection practices focusing on two Joint Commission International (JCI) Standards for Hospital Accreditation. Mixed</span></span></span><span style="font-family:Verdana;"><span style="font-family:Verdana;"><span style="font-family:Verdana;">-</span></span></span><span><span><span style="font-family:""><span style="font-family:Verdana;">conventional inductive and directed deductive content approach guided the analysis of data. <b></span><b><span style="font-family:Verdana;">Results:</span></b><span style="font-family:Verdana;"></b></span><b> </b><span style="font-family:Verdana;">The study revealed various gaps in the provided services. According to the TB physicians and nurses, they routinely educated patients and families and took actions to protect their rights. However, practices reported by TB providers varied across clinical departments and professionals and did not meet the recommendations of the JCI standards. The document review revealed that no written policies or procedures existed in the NPC inpatient unit to guide the implementation of PFE&R. Lastly, patients</span></span></span></span><span style="font-family:Verdana;"><span style="font-family:Verdana;"><span style="font-family:Verdana;">’</span></span></span><span><span><span style="font-family:""><span style="font-family:Verdana;"> inconsistent experiences were also indicative of the lack of standardization and issues with PFE&R implementation. <b></span><b><span style="font-family:Verdana;">Conclusion:</span></b><span style="font-family:Verdana;"></b></span><b> </b><span style="font-family:Verdana;">Bridging the gap between existing and recommended practices by establishing and enforcing new people-centered policies and procedures is a pledge for improving operations and patients’ experiences with a potential nationwide impact in Armenia.