Participative Research:What Are the Advantages of Thinking about Research on the Cancer Care Pathway?Views of Two Patient Co-Researchers

Two patients relate their experience as co-researchers in a research project in the human and social sciences.From the genesis of the research project to the results,they detail their participation in each stage of this project alongside care professionals and researchers:their difficulties,their contributions,their pleasure,and speculations on the conditions for improving this type of active collaboration in a participative research project.

Heart Failure: Organization of Care after Hospitalization at the Abidjan Cardiology Institute

Introduction: The care pathway for heart failure (HF) patients is poorly documented in sub-Saharan Africa. A multidisciplinary management reduces hospitalizations and mortality. In our context of frequent rehospitalization of heart failure patients, the objective of this study was to analyse the post-hospital follow-up health care. Methods: We conducted a prospective study in the medical department of a Heart Institute from January 1st to December 31, 2015. Patients over 18 years of age, hospitalized for heart failure, consenting and followed up on an outpatient basis for 2 years were included. Results: We collected 396 patients hospitalized for HF. The mean age was 57.4 ± 16 years with a male predominance (59.3%). Retired and unemployed people represented 27% and 16.2% respectively. During the post-hospitalization follow-up, patients who were regularly followed up represented 10.8% of the cases. 74.1% of the cases were regular patients. Patients were not followed up by the usual practitioner (58.2%). Only 94 patients had undergone a cardiovascular rehabilitation programme, of which 21.3% for exercise rehabilitation and 78.7% for therapeutic education. Patients who had attended titration sessions (n = 59) had reached optimal doses of ACE inhibitors, ARB II and beta blockers in 67.8%, 7.3% and 38.5% respectively. The rates of decompensation (73.3%) and rehospitalization (49.5%) were higher. The paraclinic check-up (ECG, X-ray, Cardiac Doppler ultrasonography, Biology) was rarely requested. The probability of survival was higher in patients regularly monitored than in those irregularly monitored. Conclusion: The organisation of care and coordination between professionals should be structured or planned. Therapeutic strategies need to be intensified in order to optimise their long-term benefits.

Pathways to Psychiatry Care among Children with Mental Health Problems

Many children with mental health problems in Egypt,as in many other countries,do not receive the help they need.Investigating the pathways of care is crucial for the early detection and treatment of these children.This study examined referral patterns and the duration of untreated psychiatric illness of 350 children attending two urban clinical settings in Egypt.Diagnoses were made using the Kiddie Schedule for Affective Disorder and Schizophrenia for School-aged children present and lifetime(K-SADS-PL),Child behavior checklist(CBCL,)and the Stanford-Binet Intelligence Scale.For 46.3%,the most distressing symptom was behavioral problems.A delay in seeking psychiatric help was found.positive family history,and lower socioeconomic class were asso-ciated with delays in psychiatric consultation.For 39.7%of patients,thefirst contact was with a psychiatrist.Most children were referred by relatives.Awareness programs are needed to increase knowledge about and to decrease the duration of untreated illness.

An Assessment, with NICE Guidelines as a Benchmark, of Delay to Care in a Cohort of Colorectal Cancer Patients Seen in the Witwatersrand University Academic Complex

Background: Colorectal cancer (CRC) in South Africa (S.A) is the second most common in women and the third in men. Worldwide it is the second most deadly cancer. As a subset, colon cancer is the fifth most deadly with an estimated 551,000 deaths in 2018. CRC makes up 5.8% of all cancer-related deaths globally. Despite this, there are no screening programmes in S.A, with a diagnosis being largely dependent on symptomatology. Additionally, there is no clear understanding of the significance of the outcome imposed by delay in referral and treatment. Unlike countries in Europe, South Africa has no guidelines defining cut-offs for acceptable delays in this context. Methods: A retrospective study was done on the delay in referral, diagnosis, and treatment of CRC patients. A cohort of patients in which surgery was the primary treatment that was presented to Witwatersrand Academic Hospitals was studied. Delays were benchmarked against fourteen days from primary contact to consultation with a specialist and consultation to treatment delay of more than 31 days. Definitive treatment delay was defined as the time from referral to the treatment centre and tumour resection of more than 62 days. Outcomes were evaluated by defining the 90-day mortality. Results: The median referral delay was 78 days, for treatment delay was 54 days and for definitive treatment delay was 175 days. Of the 587 patients analysed, 341 had therapeutic surgery, 17 demised within 90 days post-surgery. Longer delays and higher mortality rates were seen in the public sector and a lower socio-economic group of patients. Conclusion: The time parameters set out by the NHS and Europe were not met. There were greater delays seen in patients with lower socio-economic backgrounds and in those attending the public sector. The effect of delays on 90-day mortality is doubtful. Delays to care both outside of hospitals and in hospitals may be a point of investigation in future studies.