Objective: Type 1 diabetes is a chronic illness which can have a negative effect on the health care and development of children and can put their lives in danger. This descriptive study aimed to determine the quality ...Objective: Type 1 diabetes is a chronic illness which can have a negative effect on the health care and development of children and can put their lives in danger. This descriptive study aimed to determine the quality of life and the factors affecting it of children and adolescents with type 1 diabetes using the Pediatric Quality of Life Inventory (PedsQL).Methods: The study was conducted in the Child Endocrinology Unit of a University Hospital in Bursa, Turkey. Totally 64 children eight-12 years and 85 adolescents aged 13-18 with type 1 diabetes and their parents were recruited. HbA1c measurements were obtained from the records of the endocrinology clinicare, which were made once every three months, and the average of the last three measurements was taken in the study. The PedsQL was used to measure quality of life of the children and adolescents. The data was analyzed using SPSS version 20.0 and P<0.05 was considered significant. The demographic data of the children and parents were analyzed using means and percentiles. Pearson's correlation analysis was used to assess the relationship between two averages. Results: Of the sub-groups on the scale, affective and school function scores were somewhat low, and social function scores were high. The quality of life scores of the children and adolescents were found to correlate with those of their parents. A negative correlation was found between HbA1c levels and adolescent quality of life, a positive correlation was found between the child's age and the quality of life of the child and parents, and a negative correlation was found between the number of children in the family and the quality of life of the child and parents. Conclusions: An evaluation of the quality of life after a diagnosis of diabetes can be used to assess the problems which may be faced by children and adolescents and to combat these problems.展开更多
目的分析简体中文版儿童生活质量普通适用核心量表4.0(The pediaric quality of life inventory measurement methods,PedsQL4.0)代评式量表在气管切开儿童中的信度和效度。方法选取上海市某三甲儿童医院2011-2014年行气管切开的56名2~1...目的分析简体中文版儿童生活质量普通适用核心量表4.0(The pediaric quality of life inventory measurement methods,PedsQL4.0)代评式量表在气管切开儿童中的信度和效度。方法选取上海市某三甲儿童医院2011-2014年行气管切开的56名2~18岁的儿童家长和上海市某三甲儿童医院家中有健康儿童的职工47名进行中文版PedsQL 4.0调查,用Cronbach’sα系数表示量表的信度,采用Mannk-Whitney U检验、Spearman秩相关分析其效度。结果中文版PedsQL 4.0家长代评量表全量表、生理领域、心理社会领域的Cronbach’sα分别为0.960、0.939和0.929,表明有较好的内部一致性;气管切开术后儿童的各方面得分均低于正常儿童,差别有统计学意义(P<0.01)。结论中文版PedsQL 4.0普通适用家长代评量表具有良好的内部一致性;该量表具有较好的区分效度和内容效度,可适用气管切开术后患儿生活质量的评估,尤其是父母代评量表。展开更多
目的:儿外科手术因手术难度高、风险大,手术质量控制与评价困难。考虑到手术难度与手术质量的评价和疾病严重度密切相关,设计构建新型儿外科手术质量评价模型,用于评估儿外科手术质量。方法:将疾病严重度(severity of illness,SOI)作为...目的:儿外科手术因手术难度高、风险大,手术质量控制与评价困难。考虑到手术难度与手术质量的评价和疾病严重度密切相关,设计构建新型儿外科手术质量评价模型,用于评估儿外科手术质量。方法:将疾病严重度(severity of illness,SOI)作为手术质量评价的重要参数,查阅相关文献,历史数据回顾分析,初步确定SOI评估指标,采用网络分析法计算各指标的权重值;并将合并手术及合并症对手术结局的影响纳入模型,参考APR-DRGs为每种疾病和手术赋予权重。通过真实数据校正模型中各因子的β系数。结果:模型在北京市某三级甲等儿童专科医院予以应用,用于比较8个手术科室间的手术复杂度和手术质量评分,验证了模型的可行性。结论:儿外科手术评价模型基于疾病严重度、手术难度、院内资源消耗度的手术质量综合评价方法,为实现不同医院、不同科室、不同医生间的儿外科手术质量评价提供了一种的新方法。展开更多
目的采用儿童生存质量测定量表体系(pediatric quality of life inventory measurement models,PedsQLTM)特异性心脏病模块与家庭影响模块,评价先天性心脏病患儿生存质量评分与家庭影响评分及其相关性。方法研究对象为来自2016年2月至2...目的采用儿童生存质量测定量表体系(pediatric quality of life inventory measurement models,PedsQLTM)特异性心脏病模块与家庭影响模块,评价先天性心脏病患儿生存质量评分与家庭影响评分及其相关性。方法研究对象为来自2016年2月至2017年2月在广东省人民医院住院治疗的先天性心脏病患儿。采用流行病学现况调查方法,以自行设计的调查问卷、PedsQLTM特异性心脏病模块3.0与家庭影响模块2.0为测量工具,对先天性心脏病患儿(家长)进行调查。本次调查收集有效问卷288份(有效问卷率96.6%),其中男126例,女162例,年龄为(3.73±1.88)岁。结果先天性心脏病患儿生存质量总得分为(73.98±15.59)分;女患儿生存质量总得分高于男患儿,差异有统计学意义[(76.21±13.93)分vs.(71.11±17.13)分,t=-2.71,P=0.0072]。患儿在“心脏症状及其治疗相关问题”维度得分为(77.36±17.72)分;女患儿在该维度上得分高于男患儿,差异有统计学意义[(80.09±16.28)分vs.(73.84±18.91)分,t=-3.01,P=0.0028]。PedsQLTM家庭影响模块总得分为(59.32±17.27)分,在“情感功能相关问题”维度得分为(61.20±21.59)分。有5.21%的患儿出现“几乎总是感冒”的状况,有6.60%的患儿出现“几乎总是心搏很快”状况。有5.21%的患儿家长表示“几乎总是感到焦虑”,有3.82%患儿家长表示“几乎总是感到悲伤”。PedsQLTM心脏病模块总得分与家庭影响模块总得分呈正相关(r=0.5554,P<0.0001)。结论先天性心脏病患儿生存质量总得分处于中高水平状态,高于国内同类研究;女患儿生存质量总得分高于男患儿。PedsQLTM家庭影响模块总得分处于中等水平状态。先天性心脏病患儿PedsQLTM心脏病模块总得分与父母PedsQLTM家庭影响模块总得分显示中度正相关关系。展开更多
文摘Objective: Type 1 diabetes is a chronic illness which can have a negative effect on the health care and development of children and can put their lives in danger. This descriptive study aimed to determine the quality of life and the factors affecting it of children and adolescents with type 1 diabetes using the Pediatric Quality of Life Inventory (PedsQL).Methods: The study was conducted in the Child Endocrinology Unit of a University Hospital in Bursa, Turkey. Totally 64 children eight-12 years and 85 adolescents aged 13-18 with type 1 diabetes and their parents were recruited. HbA1c measurements were obtained from the records of the endocrinology clinicare, which were made once every three months, and the average of the last three measurements was taken in the study. The PedsQL was used to measure quality of life of the children and adolescents. The data was analyzed using SPSS version 20.0 and P<0.05 was considered significant. The demographic data of the children and parents were analyzed using means and percentiles. Pearson's correlation analysis was used to assess the relationship between two averages. Results: Of the sub-groups on the scale, affective and school function scores were somewhat low, and social function scores were high. The quality of life scores of the children and adolescents were found to correlate with those of their parents. A negative correlation was found between HbA1c levels and adolescent quality of life, a positive correlation was found between the child's age and the quality of life of the child and parents, and a negative correlation was found between the number of children in the family and the quality of life of the child and parents. Conclusions: An evaluation of the quality of life after a diagnosis of diabetes can be used to assess the problems which may be faced by children and adolescents and to combat these problems.
文摘目的:儿外科手术因手术难度高、风险大,手术质量控制与评价困难。考虑到手术难度与手术质量的评价和疾病严重度密切相关,设计构建新型儿外科手术质量评价模型,用于评估儿外科手术质量。方法:将疾病严重度(severity of illness,SOI)作为手术质量评价的重要参数,查阅相关文献,历史数据回顾分析,初步确定SOI评估指标,采用网络分析法计算各指标的权重值;并将合并手术及合并症对手术结局的影响纳入模型,参考APR-DRGs为每种疾病和手术赋予权重。通过真实数据校正模型中各因子的β系数。结果:模型在北京市某三级甲等儿童专科医院予以应用,用于比较8个手术科室间的手术复杂度和手术质量评分,验证了模型的可行性。结论:儿外科手术评价模型基于疾病严重度、手术难度、院内资源消耗度的手术质量综合评价方法,为实现不同医院、不同科室、不同医生间的儿外科手术质量评价提供了一种的新方法。
文摘目的采用儿童生存质量测定量表体系(pediatric quality of life inventory measurement models,PedsQLTM)特异性心脏病模块与家庭影响模块,评价先天性心脏病患儿生存质量评分与家庭影响评分及其相关性。方法研究对象为来自2016年2月至2017年2月在广东省人民医院住院治疗的先天性心脏病患儿。采用流行病学现况调查方法,以自行设计的调查问卷、PedsQLTM特异性心脏病模块3.0与家庭影响模块2.0为测量工具,对先天性心脏病患儿(家长)进行调查。本次调查收集有效问卷288份(有效问卷率96.6%),其中男126例,女162例,年龄为(3.73±1.88)岁。结果先天性心脏病患儿生存质量总得分为(73.98±15.59)分;女患儿生存质量总得分高于男患儿,差异有统计学意义[(76.21±13.93)分vs.(71.11±17.13)分,t=-2.71,P=0.0072]。患儿在“心脏症状及其治疗相关问题”维度得分为(77.36±17.72)分;女患儿在该维度上得分高于男患儿,差异有统计学意义[(80.09±16.28)分vs.(73.84±18.91)分,t=-3.01,P=0.0028]。PedsQLTM家庭影响模块总得分为(59.32±17.27)分,在“情感功能相关问题”维度得分为(61.20±21.59)分。有5.21%的患儿出现“几乎总是感冒”的状况,有6.60%的患儿出现“几乎总是心搏很快”状况。有5.21%的患儿家长表示“几乎总是感到焦虑”,有3.82%患儿家长表示“几乎总是感到悲伤”。PedsQLTM心脏病模块总得分与家庭影响模块总得分呈正相关(r=0.5554,P<0.0001)。结论先天性心脏病患儿生存质量总得分处于中高水平状态,高于国内同类研究;女患儿生存质量总得分高于男患儿。PedsQLTM家庭影响模块总得分处于中等水平状态。先天性心脏病患儿PedsQLTM心脏病模块总得分与父母PedsQLTM家庭影响模块总得分显示中度正相关关系。
