Supporting People Affected by Cancer and Their Family:Population Health Intervention Research,a Scientific Lever for Public Institutions

[French version]Le cancer est l’une des maladies les plus répandues dans le monde:on estimait en 2018à18,1 millions le nombre de nouveaux cas diagnostiqués(toute localisation confondue)età9,6 millions celui de décès par cancer[1].L’Europe est particulièrement concernée avec 23,4%de nouveaux cas diagnostiqués et 20,3%de décès par cancer[1].Enfin en France,on estime en 2023à433138 le nombre de nouveaux cas età157400 le nombre de décès par cancer estimés en 2018[2].

Intervention Research and Support Systems for People Affected by Cancer and Their Families:Results of a Descriptive Analysis

Population health intervention research(PHIR)was initiated in the field of primary prevention by proposing a research paradigm focusing on intervention and the theory of solutions.The intervention was coconstructed with the stakeholders as part of a global approach until its deployment in the local area.The development of PHIR raises the question of its application to tertiary prevention.This study proposes some initial thoughts on the similarities and specificities of PHIR projects-funded by the French National Cancer Institute(INCa)-of support systems for people affected by cancer and their families,which were based on a descriptive analysis.The selected projects were obtained from the databases of PHIR projects funded from 2010 to 2021,which included 72 projects to which the inclusion and exclusion criteria were applied.A descriptive analysis was carried out for each project using the application files and the interim or final reports sent to INCa.A total of 30 projects were selected,half of which were in the public health field.Almost all of the projects involved a university–hospital partnership,and one-third involved healthcare professionals and patients in the research process.Patient involvement was classified into four types,which were linked to the supporting structure and the target population.The main themes of the projects were quality of life and adapted physical activity,which were assessed in hospitals through randomized controlled trials targeting specific cancers.Research has revealed several specificities and similarities between support systems for people affected by cancer and their families developed in PHIR projects;however,these support systems vary widely,and PHIR in tertiary prevention can be conducted in several ways.Any modeling of the systems is complicated;PHIR is evolving in its application and is the subject of research and evaluation.

From Research Data to Intervention Models: Intervening with All Stakeholders

[French version]En tant que dispositif de recherche innovant pour développer et mettre en oeuvre les préventions,la recherche interventionnelle en santédes populations(RISP)occupe une place particulière dans le déploiement de la stratégie décennale française de lutte contre les cancers.