Background and aim: People suffering from mental illness and their experiences of attitudes towards them are rarely investigated from the perspective of the individual. The aim was to gain an understanding of how a gr...Background and aim: People suffering from mental illness and their experiences of attitudes towards them are rarely investigated from the perspective of the individual. The aim was to gain an understanding of how a group of mental health patients experienced social relationships in personal settings as well as in society. Method: Open interviews with twenty-five mental health patients were conducted and analysed with a qualitative content analysis. Result: The essence of the result was that mental health patients’ experiences are still not taken enough into account, neither by mental health professionals nor by their social networks. This was underpinned by four core categories: Patients’ experience of deteriorated and reduced social contacts due to various degrees of acceptance and knowledge of people in general;service users reported on difficulties with social contacts in general, with family relationships, relationships with friends and workmates and with employers;reduced life opportunities were expressed, including violated self-image and poor coping competence and, ambivalent experiences of contact with the mental health services were reported. Conclusion and clinical implication: The present study contributes to the understanding of mental health patients’ experiences of professional services and of their social networks. This knowledge may strengthen the implications of patient-centred care essential for the outcome of the care.展开更多
The aim of this two-year prospective RCT-study was to evaluate children＇s HRQOL after a family intervention providing support with four sessions for six months following diagnosis of type 1 diabetes （T1DM）, with fo...The aim of this two-year prospective RCT-study was to evaluate children＇s HRQOL after a family intervention providing support with four sessions for six months following diagnosis of type 1 diabetes （T1DM）, with follow-up sessions at 12, 18, and 24 months. Ninety-eight children aged 3-15 years, recently diagnosed with T1DM, participated with their parents. At six and 24 months after diagnosis, the child, mother, and father independently completed the PedsQL 4.0 Generic Scale and PedsQL 3.0 Diabetes Module Scale, and the child＇s glycemic control （HbAlc value） was measured. After six months, children in the intervention group had better generic HRQOL than the control group （P 〈 0.03）. At 24 months, these children and their fathers rated the child＇s diabetes-specific HRQOL as significantly better （P 〈 0.01, P 〈 0.04） and the child＇s worry as lower （P 〈 0.02, P 〈 0.03） compared to the control group. Communication skills improved significantly over time in the intervention group （P 〈 0.01）. There were no significant differences between control and intervention group regarding glycemic control, measured as HbA 1 c, either at 6 or 24 months. This study highlights the importance of psychological support after the onset of T1DM, especially facilitating communication skills within the family in the immediate and ongoing care.展开更多
The aim was to assess whether temporal changes in the initial management for children diagnosed with type 1 diabetes over a ten year period affected metabolic control two years after diagnosis. A further aim was to in...The aim was to assess whether temporal changes in the initial management for children diagnosed with type 1 diabetes over a ten year period affected metabolic control two years after diagnosis. A further aim was to investigate if social factors, registered at diagnosis, had an impact on metabolic control two years after diagnosis. During the years 1997-2006, 247 children and adolescents were diagnosed with type 1 diabetes at a University Hospital in Sweden. The analysed data included HbA1c, pH at diagnosis, initial intravenous insulin infusion and length of hospital stay at diag?nosis, subcutaneous insulin type, number of diabetes check-up visits, emergency visits, re-admissions and social factors. Length of hospital stay decreased significantly over the ten year period. Neither hospital stay nor differences in insulin treatment was significantly correlated with children’s metabolic control over time. Length of hospital stay was not re?lated with families’ social stress situation. However, girls in families with more family stress at the time of diagnosis had higher HbA1c during follow-up than girls with less family stress or boys. Factors of importance for the child’s long-term metabolic control need to be further investigated so the initial management can be tailored to each individual family’s needs. This would imply an effective utilization of both families’ and health care resources.展开更多
文摘Background and aim: People suffering from mental illness and their experiences of attitudes towards them are rarely investigated from the perspective of the individual. The aim was to gain an understanding of how a group of mental health patients experienced social relationships in personal settings as well as in society. Method: Open interviews with twenty-five mental health patients were conducted and analysed with a qualitative content analysis. Result: The essence of the result was that mental health patients’ experiences are still not taken enough into account, neither by mental health professionals nor by their social networks. This was underpinned by four core categories: Patients’ experience of deteriorated and reduced social contacts due to various degrees of acceptance and knowledge of people in general;service users reported on difficulties with social contacts in general, with family relationships, relationships with friends and workmates and with employers;reduced life opportunities were expressed, including violated self-image and poor coping competence and, ambivalent experiences of contact with the mental health services were reported. Conclusion and clinical implication: The present study contributes to the understanding of mental health patients’ experiences of professional services and of their social networks. This knowledge may strengthen the implications of patient-centred care essential for the outcome of the care.
文摘The aim of this two-year prospective RCT-study was to evaluate children＇s HRQOL after a family intervention providing support with four sessions for six months following diagnosis of type 1 diabetes （T1DM）, with follow-up sessions at 12, 18, and 24 months. Ninety-eight children aged 3-15 years, recently diagnosed with T1DM, participated with their parents. At six and 24 months after diagnosis, the child, mother, and father independently completed the PedsQL 4.0 Generic Scale and PedsQL 3.0 Diabetes Module Scale, and the child＇s glycemic control （HbAlc value） was measured. After six months, children in the intervention group had better generic HRQOL than the control group （P 〈 0.03）. At 24 months, these children and their fathers rated the child＇s diabetes-specific HRQOL as significantly better （P 〈 0.01, P 〈 0.04） and the child＇s worry as lower （P 〈 0.02, P 〈 0.03） compared to the control group. Communication skills improved significantly over time in the intervention group （P 〈 0.01）. There were no significant differences between control and intervention group regarding glycemic control, measured as HbA 1 c, either at 6 or 24 months. This study highlights the importance of psychological support after the onset of T1DM, especially facilitating communication skills within the family in the immediate and ongoing care.
文摘The aim was to assess whether temporal changes in the initial management for children diagnosed with type 1 diabetes over a ten year period affected metabolic control two years after diagnosis. A further aim was to investigate if social factors, registered at diagnosis, had an impact on metabolic control two years after diagnosis. During the years 1997-2006, 247 children and adolescents were diagnosed with type 1 diabetes at a University Hospital in Sweden. The analysed data included HbA1c, pH at diagnosis, initial intravenous insulin infusion and length of hospital stay at diag?nosis, subcutaneous insulin type, number of diabetes check-up visits, emergency visits, re-admissions and social factors. Length of hospital stay decreased significantly over the ten year period. Neither hospital stay nor differences in insulin treatment was significantly correlated with children’s metabolic control over time. Length of hospital stay was not re?lated with families’ social stress situation. However, girls in families with more family stress at the time of diagnosis had higher HbA1c during follow-up than girls with less family stress or boys. Factors of importance for the child’s long-term metabolic control need to be further investigated so the initial management can be tailored to each individual family’s needs. This would imply an effective utilization of both families’ and health care resources.
